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The Partners for Advancing Health Equity (P4HE) Resource Library is a virtual portal containing action-oriented health equity research, practice, and policies. The library aims to increase equity in health by offering free access to field-tested, evidence-informed and evidence-based programs strategies and high-quality research.
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- The COVID-19 pandemic shined a light on the inequities of the healthcare system that exist for people with intellectual and/or developmental disabilities. For many people with IDD and caregivers, receiving care in a hospital setting has always been a challenging experience. We know that training in this area is lacking. Education and experiential learning for healthcare professionals is essential…December 2021Policy and Practice
- The 2020-21 school year demanded something brand new—shaped by the needs of students, families and educators facing unprecedented challenges. In this crisis, existing inequities grew worse. They required targeted solutions and a reimagining of the status quo. The best solutions were designed to help students and families least supported by the system. And those solutions proved widely…October 2021Education, Ableism
- This commentary summarizes recent literature pertaining to healthcare challenges and needs during the current pandemic among refugees and asylum seekers residing in a host country. We conducted a literature review to identify barriers to shielding these structurally marginalized populations from the impact of the COVID-19 pandemic. (author abstract) #P4HEwebinarNovember2022July 2021COVID-19/Coronavirus, Social Environment
- Definition and prevalence of Intellectual DisabilityIntellectual disability (ID) is characterized by significant limitations both in intellectual functioning (e.g. reasoning, learning, problem solving) and in adaptive behavior in a range of everyday social and practical skills. This disability originates before the age of 18 years. Etiologies of ID include, but are not restricted to: cerebral…July 2021Illness/Disease/Injury/Wellbeing
- Since the 1960s the immigrant population in the United States has increased fourfold, reaching 44.7 million, or 13.7 percent of the US population, in 2018. The shifting immigrant demography presents several challenges for US health policy makers. We examine recent trends in immigrant health and health care after the Great Recession and the nationwide implementation of the Affordable Care Act.…July 2021Policy and Practice
- Immigration has been historically and contemporarily racialized in the United States. Although each immigrant group has unique histories, current patterns, and specific experiences, racialized immigrant groups such as Latino, Asian, and Arab immigrants all experience health inequities that are not solely due to nativity or years of residence but also influenced by conditional citizenship and…June 2021Health Reform, Racism
- Loneliness and social isolation in older adults are serious public health risks affecting a significant number of people in the United States and putting them at risk for dementia and other serious medical conditions. A report from the National Academies of Sciences, Engineering, and Medicine (NASEM) points out that more than one-third of adults aged 45 and older feel lonely, and nearly one-…April 2021Aging and Life Course
- BackgroundPeople with intellectual and developmental disabilities (IDD) appear to be at greater risk for severe outcomes from COVID-19. The roles of congregate living and skilled nursing care needs in this disparity are unclear.ObjectiveTo determine the impact of residential setting and level of skilled nursing care on COVID-19 outcomes for people receiving IDD services, compared to those not…April 2021COVID-19/Coronavirus
- The passage of US immigrant-related policies at the federal, state, and local level is on the rise. These policies may affect child health through several mechanisms. We performed a systematic review of English-language, peer-reviewed, quantitative studies examining US immigrant-related policies and the mental and physical health of youth in immigrant families. We searched PubMed and five social…February 2021Policy & Law
- Differential impacts of the COVID-19 pandemic have brought deeply rooted inequities to the forefront, where increasing evidence has shown that racialized immigrant and migrant (im/migrant) populations face a disproportionate burden of COVID-19. Im/migrant communities may be worst affected by lockdowns and restrictive measures, face less opportunity to physically distance or stay home sick within…February 2021COVID-19/Coronavirus, Social/Structural Determinants
- Autism research has a race problem. Despite improvements in screening and diagnosis, autism continues to be underdiagnosed in Black and Hispanic children, and those who obtain a diagnosis often have limited access to support services. Racial disparities persist during the transition to adulthood, with autistic adults from racial and ethnic minority groups experiencing a number of challenges,…December 2020Mental/Behavioral Health
- This special webinar series explores how climate change affects low-income people, Black, Indigenous, Latinx, people of color and other people who are at increased risk due to climate change. In addition, presenters will suggest what is needed to prevent illness, disability, and death from climate change-related conditions among these and other Connecticut residents. Each webinar was held for one…December 2020
- Objective: This population-based study examines whether immigration status is associated with chronic pain (CP), chronic widespread pain (CWSP), and severe CP at a two-year follow-up. We also tested mediation by mood status (i.e., anxiety and depression).Methods: 15, 563 participants from a representative stratified random sample of 34,000 individuals living in south-eastern Sweden completed a…September 2020
- The Americans with Disabilities Act became law in 1990 to help remove barriers in the workplace and in daily life for people with disabilities. As we celebrate the 30th anniversary of the law, let’s examine the barriers to employment for those with disabilities. In July 2019, 47.5 percent of people age 16 and older with a disability who were not employed (either unemployed or not in the labor…July 2020Policy and Practice
- Background: Globally, people with intellectual disabilities and/or autism experience health inequalities. Death occurs at a younger age and the prevalence of long-term morbidities is higher than in the general population. Despite this, their primary healthcare access rates are lower than the general population, their health needs are often unmet, and their views and experiences are frequently…July 2020Policy and Practice
- Training needs of professionals who serve people with IDD and mental health needs and their familiesUp to 40% of people with intellectual and developmental disabilities (IDD) experience co-occurring mental illness. Despite the prevalence of mental health needs among people with IDD, little is known about the best approaches for supporting the needs of people with IDD and co-occurring mental health challenges and their families. This uncertainty has led to the dependence on outdated and…November 2019Policy and Practice
- Over the past 20 years, services and supports for people with intellectual and developmental disabilities (IDD) have changed significantly. The vast majority of adults with IDD now live in home and community-based settings rather than institutions. Data are collected on the IDD population's use of public programs (e.g., Medicaid and Social Security), their places of residence, and their…September 2019Services & Programs
- Background: Increasing numbers of children have been forced to flee and seek asylum in high-income countries. Current research indicates that focusing on resilience and protective factors is an important long-term goal for positive mental health and psychological functioning of refugee children.Methods: We performed a systematic review of quantitative literature regarding psychological and…August 2019Migration
- Care providers are key agents in the lives of individuals with an intellectual disability (ID). The quality of their support can be affected by manifestations of stigma. This scoping review was conducted to explore studies that provide indications of care providers’ stigmatization of people with ID. Methods: A structured search was made in four databases to identify relevant studies in English-…July 2019Isms and Phobias
- Patients with a history of intellectual disability (ID) have been noted to experience pain more frequently and to a higher degree than the general population. Previously referred to as “mental retardation,” ID occurs in approximately 1% of the population. A diagnosis of ID is generally based upon the presence of an intelligence quotient score below a specific level, along with noted impairments…April 2019Illness/Disease/Injury/Wellbeing
- Background: Patient-centered care for people with disability requires effective communication and compliance with the Americans with Disabilities Act (ADA).Objective: To understand physicians’ perspectives on communication experiences with people with disability.Design: Twenty semi-structured individual interviews. Interview recordings were transcribed verbatim for analysis.Setting: Massachusetts…March 2019Policy and Practice
- The Office of Developmental Primary Care facilitated two discussion groups in order to learn more about the experiences of people with disabilities and their families in accessing the health care system. Discussion topics included communication, personal life values, changes in or loss of function, medical decision-making, and end of life care conversations. Our ultimate purpose was to uncover…January 2019
- Background: Equitable access to health services is a key ingredient in reaching health for persons with disabilities and other vulnerable groups. So far, research on access to health services in low- and middle-income countries has largely relied on self-reported survey data. Realizing that there may be substantial discrepancies between perceived and actual access, other methods are needed for…June 2018Services & Programs
- Objective: To delineate the factors inherent in caring for patients with intellectual and developmental disabilities (IDD) that lead to complexity and to provide perspectives and techniques mapped to the phases of the clinical encounter.Sources of information: The authors of the physical health section of the 2018 Canadian consensus guidelines on the primary care of adults with IDD consisted of…April 2018Policy and Practice
- Objective: To update the 2011 Canadian guidelines for primary care of adults with intellectual and developmental disabilities (IDD).Methods: Family physicians and other health professionals experienced in the care of people with IDD reviewed and synthesized recent empirical, ecosystem, expert, and experiential knowledge. A system was developed to grade the strength of recommendations.…April 2018Policy and Practice
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